Today we got the awesome news that I'm officially NED - No Evidence of Disease. We got to see an axial view of the PET scan that I didn't know how to interpret (slices of my body from the head down). We looked at the March and May scans and it was really obvious how much the chemo has eliminated all the hot spots that indicate metabolic activity indicative of cancer growth.
So, in a word - hurray! Just the news that we were hoping to get. So this means (probably), no radiation and I'll be done with this whole thing in another 98 days.
But the news wasn't completely positive... We're not done with this journey yet - I have 7 more treatments after today over the next 14 weeks and my blood work isn't great - white blood cell counts continue to go down so I'm going to get some Neulasta to stimulate white blood cell growth. This is a step we've been trying to avoid because there's some anecdotal evidence that an interaction bewteen Neulasta and Bleomycin can cause some lung toxicity. So I'm getting a smaller dose of Neulasta than normal but it will hopefully get my white blood cell count to improve.
Also, as I noted in a previous post, my port looks to be a problem so we're taking it out. I'll get a PICC line which requires more care as the port part of the setup is outside your body. I asked the nurse how many port fails and she said it was a pretty small number.Probably < 3%? So I'm kind of unlucky to have this problem and combined with my low white blood cell count it's concerning. So, we'll change course a bit, get the PICC line and see how that works. The good news is that I'm getting the full dose of meds today, so that's the important thing to concentrate on.
So I have no evidence of disease which is awesome!